Characterized by a combination of three features, possibly due to the underdevelopment of the lower jaw. The lower jaw is abnormally small (micrognathia), the tongue is displaced downwards (glossoptosis), and there is an abnormal opening in the roof of th...
This page was last updated on October 3rd, 2008
This page was last updated on October 3rd, 2008
Pierre Robin Syndrome (from Rare Disorders)
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Contact a Family: Pierre Robin Syndrome
Main features of the condition and possible causes.
NORD - Pierre Robin Syndrome
Sample report, plus links to organisations. [Fee required for full report]
Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
Chase's Story
Personal account of one child's experience of this condition. Includes photographs.
Main features of the condition and possible causes.
Sample report, plus links to organisations. [Fee required for full report]
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
Personal account of one child's experience of this condition. Includes photographs.
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