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Explore: Rare Disorders, Conditions and Diseases

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This page was last updated on July 1st, 2008
Rare Disorders (from Conditions and Diseases)
Canadian Content » Health » Conditions_and_Diseases » Rare_Disorders »
TetrahydrobiopterinTetrahydrobiopterin
Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
Lymphangiomatosis and Gorham's Vanishing Bone DiseaseLymphangiomatosis and Gorham's Vanishing Bone Disease
Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
Fibrous Dysplasia Support OnlineFibrous Dysplasia Support Online
For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
International Rare Disease Support NetworkInternational Rare Disease Support Network
A community providing more than a 1000 different links to support groups for the people of all nations.
National Organization for Rare Disorders, Inc.National Organization for Rare Disorders, Inc.
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
Contact a FamilyContact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
Nomid /CincaNomid /Cinca
Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email suppo
Human Growth FoundationHuman Growth Foundation
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
Office of Rare DiseasesOffice of Rare Diseases
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
Fibrosing MediastinitisFibrosing Mediastinitis
The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum.
CherubsCherubs
A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
Kindler SyndromeKindler Syndrome
An article and case study of this rare disease. Includes links.

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The Purpose of Pain Philosophy Discussion


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