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Explore: Personal Pages, Rett Syndrome

Personal stories about Rett's Syndrome in hopes of giving other out there facing the same situations, some hope that they are not alone....
This page was last updated on October 12th, 2008
Personal Pages (from Rett Syndrome)
Canadian Content » Health » Conditions_and_Diseases » Neurological_Disorders » Rett_Syndrome » Personal_Pages »
Rett SyndromeRett Syndrome
Irma Penner's book, The Right to Belong-The Story of Yvonne, describes the importance of community and school integration for children with severe disabilities.
Kimbo's KornerKimbo's Korner
Story of a young woman living with Rett Syndrome. Many pictures and links.
Rebekah's Rett SyndromeRebekah's Rett Syndrome
Personal story of Rebekah through 3 years of tests, diagnosis, and finally news of the gene being found.
Idaho Mountain ExpressIdaho Mountain Express
Local mom hopes to educate others about Retts Syndrome.
Touched by an AngelTouched by an Angel
Introduction to Rett Syndrome and Angelman Syndrome, a personal view, photographs, and links.
Helping Girls with Rett Syndrome Improve GrowthHelping Girls with Rett Syndrome Improve Growth
February 23, 1999. News from the USDA Agricultural Research Service.
Rett Syndrome ParentRett Syndrome Parent
Contact and help for parents of a child with Rett Syndrome.
Kim JohnsonKim Johnson
The deterioration associated with Rett Syndrome has left her severely dyspraxic and without speech. Personal story.
Debbie Schilling and Tom BundyDebbie Schilling and Tom Bundy
Personal stories and various links for Rett Syndrome information.
WM HouseWM House
Information, stories, and contact networks.
Living With Rett SyndromeLiving With Rett Syndrome
Connie's story with information and links.
The CoenraadsThe Coenraads
A family's battle with Rett Syndrome, plus help links and information.

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