Explore: Tuberous Sclerosis, Neurodegenerative Diseases
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This page was last updated on October 12th, 2008
This page was last updated on October 12th, 2008
Tuberous Sclerosis (from Neurodegenerative Diseases)
Canadian Content » Health » Conditions_and_Diseases » Neurological_Disorders » Neurodegenerative_Diseases » Tuberous_Sclerosis »
Tuberous Sclerosis Fact Sheet
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
Kolten's Tuberous Sclerosis Page
Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
Tuberous Sclerosis - Lisa's Site
An incurable genetic condition that causes tumors to grow in various places in the body.
Team Tamara
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
Matthew's Site for Tuberous Sclerosis Awareness
Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
Tuberous Sclerosis Association
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
Information and support for persons affected by Tuberous Sclerosis Complex in Canada.
Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
Tuberous Sclerosis Alliance
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program
Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
Tuberous Sclerosis
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Pediatric Oncall- Tuberous Sclerosis
Offers commonly asked questions about this disease.
NORD: Tuberous Sclerosis
Offers alternative names, a general discussion and further resources.
National Library of Medicine
A list of synonyms, a summary and major features of tuberous sclerosis.
Marian's Life with Tuberous Sclerosis
Marian's story. Information about the disease, pictures, contacts, medicine, links.
Tuberous Sclerosis Hub
A brief definition of, followed by links to overviews, research articles, case reports and images.
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
An incurable genetic condition that causes tumors to grow in various places in the body.
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Offers commonly asked questions about this disease.
Offers alternative names, a general discussion and further resources.
A list of synonyms, a summary and major features of tuberous sclerosis.
Marian's story. Information about the disease, pictures, contacts, medicine, links.
A brief definition of, followed by links to overviews, research articles, case reports and images.
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