The musculary dystrophies are a group of diseases characterized by progressive degeneration and/or loss of muscle fibers that result in loss of muscle strength. All or nearly all of them have a hereditary origin but details of the type of genetic defect a...
This page was last updated on October 12th, 2008
This page was last updated on October 12th, 2008
Muscular Dystrophies (from Muscle Diseases)
Canadian Content » Health » Conditions_and_Diseases » Neurological_Disorders » Muscle_Diseases » Muscular_Dystrophies »
Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
NINDS Muscular Dystrophy Information Page
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Becker Muscular Dystrophy Information Exchange
Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
DMD Information and Resources for Teachers
Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
General Practice Notebook - Duchenne muscular dystrophy
Clinically-oriented information.
Muscular Dystrophy Community
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
FSH Friends
This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
My Life Caring For My Son Who Has Duchenne Muscular Dystrophy
Caring for a child with the following problems duchenne muscular dystrophy,congenital adrenal hypoplasia and glycerol kinase deficiency.
Duchennes
Provides links to medical and non-medical organizations and people with Duchennes problems.
Dr. John R. Bach - The DMD/SMA/ALS Doc
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
DMD Information
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
HealtHub
A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
DMDpioneers.org Forums
Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and quality of life issues for people with DMD.
MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
Duchenne/Becker Muscular Dystrophy
Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
Ask NOAH About: Muscular Dystrophy
The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
Clinically-oriented information.
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
Caring for a child with the following problems duchenne muscular dystrophy,congenital adrenal hypoplasia and glycerol kinase deficiency.
Provides links to medical and non-medical organizations and people with Duchennes problems.
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and quality of life issues for people with DMD.
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).
Muscle Diseases >> Muscular Dystrophies yielded other results on Canadian Content:
|
We haven't found any relevant pages yet. |
|
 |
-
