Lupus:Personal Pages consolidates and shares lupus patients personal websites. Many patients offer peeks in their journals, share their progression and treatments, discuss coping strategies and their experiences while battling lupus....
This page was last updated on August 21st, 2008
This page was last updated on August 21st, 2008
Personal Pages (from Lupus)
Canadian Content » Health » Conditions_and_Diseases » Musculoskeletal_Disorders » Connective_Tissue » Lupus » Personal_Pages »
Michelle Soignée
Includes photo of discoid rash, causes, and treatment courses.
Ritter-Bright, Dionne
After 16 years with SLE she needs a transplant.
KC Dockal alt.support.lupus FAQ
Frequently asked questions and answers addressing symptoms, treatments, common diagnostic tests and procedures, and filing for disability in the US and UK. Also includes information on the usernet alt.support.lupus.
Lupus Information Center
Health through knowledge and power: information, statistics, little known facts, common misconceptions, and more than 60 personal stories.
Lupus and Art
Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well as information about symptoms, treatments, and coping.
I Fell Down: A Story of Lupus
The author tells about her life with this disease. Find support, links, chat and prayer.
Sarah's Lupus Webpage
Directory of pamphlets, articles, and personal stories to learn more about the disease, coping mechanisms, and support.
My Personal Experience in UK
The effect of lupus on my life, information about lupus and support in the UK like benefits, care, wheelchairs, links to support groups and facts, a chat room.
Lupus Patients Understanding and Support
Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as Hughes syndrome.
The Lupus Site
Diagnostic information, tests, medications, advice, support, forum, and survey with over 150 pages of information.
Miller, Cyndee
General information, personal experiences, a 30 year Lupus patient, with extensive links.
Follow My Lupus
Follow Brett Borowski from initial diagnosis in 1994 to the present, including treatment with Cytoxan. It includes a narrative account, lab results, medications, and other resources.
Living with Lupus
Directory and support for people living with this, and other autoimmune conditions, as well as their family and friends.
Women's Info Page
Both general and personal disease information, and how to get free medications.
But You Don't Look Sick?
Includes personal stories, product reviews, links.
Monicas Lupus Story
A Story of a systemic disease sufferer in the UK, with additional informational directory.
Loonie's Lupus Page
Outlines different types of the disease, directory of support and informational sites, and share a personal experience.
Terri's Angels of Hope
Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and message boards for fellow sufferers including lupus, COPD, and congestive heart failure.
Lupus Family Circle
Information about Lupus, news updates, forums for sharing personal experiences, a support group and resource links.
The Lupie Bin
Lupus information, support, stories and FAQs. Questions from fellow lupies and their friends and family are welcome.
A Fight For A Cure
A personal story about life with lupus.
Includes photo of discoid rash, causes, and treatment courses.
After 16 years with SLE she needs a transplant.
Frequently asked questions and answers addressing symptoms, treatments, common diagnostic tests and procedures, and filing for disability in the US and UK. Also includes information on the usernet alt.support.lupus.
Health through knowledge and power: information, statistics, little known facts, common misconceptions, and more than 60 personal stories.
Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well as information about symptoms, treatments, and coping.
The author tells about her life with this disease. Find support, links, chat and prayer.
Directory of pamphlets, articles, and personal stories to learn more about the disease, coping mechanisms, and support.
The effect of lupus on my life, information about lupus and support in the UK like benefits, care, wheelchairs, links to support groups and facts, a chat room.
Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as Hughes syndrome.
Diagnostic information, tests, medications, advice, support, forum, and survey with over 150 pages of information.
General information, personal experiences, a 30 year Lupus patient, with extensive links.
Follow Brett Borowski from initial diagnosis in 1994 to the present, including treatment with Cytoxan. It includes a narrative account, lab results, medications, and other resources.
Directory and support for people living with this, and other autoimmune conditions, as well as their family and friends.
Both general and personal disease information, and how to get free medications.
Includes personal stories, product reviews, links.
A Story of a systemic disease sufferer in the UK, with additional informational directory.
Outlines different types of the disease, directory of support and informational sites, and share a personal experience.
Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and message boards for fellow sufferers including lupus, COPD, and congestive heart failure.
Information about Lupus, news updates, forums for sharing personal experiences, a support group and resource links.
Lupus information, support, stories and FAQs. Questions from fellow lupies and their friends and family are welcome.
A personal story about life with lupus.
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