Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectod...
This page was last updated on October 7th, 2008
This page was last updated on October 7th, 2008
Ectodermal Dysplasia (from Genetic Disorders)
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The Ectodermal Dysplasia Mailing List
Includes instructions on joining the list, FAQs and links to further resources.
NORD: Ectodermal Dysplasias
Offers synonyms, a general discussion and resources.
Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
National Foundation for Ectodermal Dysplasia
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
The CaF Directory
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
The Andy Fund
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
Includes instructions on joining the list, FAQs and links to further resources.
Offers synonyms, a general discussion and resources.
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
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