Batten Disease is named after the British pediatrician who first described it in 1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs). Although Batte...
This page was last updated on August 12th, 2008
This page was last updated on August 12th, 2008
Batten (from Genetic Disorders)
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Batten Disease Information Page
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
seeAbility - Juvenile Battens Disease
An in depth article on this disorder, includes the stages of the disease and the symptoms.
Batten Disease Support and Research Association
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
Batten Disease Family Association
Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
The Luke and Rachel Batten Foundation
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
The Natey Foundation
Information for parents and families of Battens victims.
Nathan's Battle
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
An in depth article on this disorder, includes the stages of the disease and the symptoms.
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
Information for parents and families of Battens victims.
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
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